Tuesday, March 11, 2014

If you need a waiver, let me know!!!!


What is Amyloidosis?

I strongly encourage you, (unless you have already done so) to please check out: amyloidosis.org

I have been so incredibly fortunate to work with and have so much support from so many people, co -workers, friends, near and far to be able to have had this run and walk take place last year for my dad; this is not only for him, as I know others who have also lost dear family members and friends to this terrible disease.  Together we can all raise awareness, in hope to someday find a cure or at least earlier detection and/ treatment methods.

Here is a quick explanation of Amyloidosis:


“Amyloidosis is a group of diseases in which one or more organ systems in the body accumulate deposits of abnormal proteins known as amyloid. The name “amyloidosis” was first used more than 150 years ago, but cases were described over 300 years ago. However, only within the past 25 years have physicians understood the specific make-up and structure of amyloid proteins. Although amyloidosis is not cancer, it is very serious. It is disabling or life threatening. However, growing awareness of the condition seems to be leading to substantial new research and treatment alternatives.” (taken from Amyloidosis.org) 


Directions to Miles 4 Amyloidosis Awareness May 10th, 2014
Little Falls, NY

From the Utica Area:
-Pick up NY 5s East (you will be on here for a while, passing Frankfort, Ilion, Mohawk and Herkimer areas)
-Turn Left onto NY- 167
-Then you will take your first left on to Southern Ave. (You will see a sign the is blue and yellow that says Little Falls Canal Harbor – you are in the right spot!!!)

Parking: There is some parking on the side of the Marina building (grey and white), and also at the machinery shop across the street over-flow parking is further up the road beyond the marina.  Please do not double park or park on the street, where is says not to, as this is due to City Safety Regulations. 

We also strongly encourage car-pooling this event. We look forward to seeing you and hope you enjoy!  Thank you for your support !!

If you have any questions please call:
(315) 868-1017 Sharon Bryan
(315) 939-9824 Laura Bryan

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